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HIV/AIDS & the Deaf Community
Share thoughts, experiences, questions, information, etc.!
From: Daniel Overbay (HH)
Date: Mon, 1 Jan 1996 17:32:41
(Originally posted in Open Forum)
Pen Pals?
I'm enthused that we can have resources like this to communicate..
I wonder if there is any pen pal sort of things....especially for
us HIV +'s.....its difficult being houseridden...and alone...nice to
chat with others...:). Email.
From: kmorales (a hearing-signer)
Date: Sun, 4 Feb 1996 14:57:41
The Effects of HIV and AIDS on the Deaf Community
I am doing my senior thesis on this topic and I want first hand info. I am hearing and have taken three semesters of ASL, does anyone want to help me? Email.
From: John Crabtree-Ireland (an Interpreter)
Date: Sun, 18 Feb 1996 17:57:25
HIV & Deaf Queers
I just attended a weekend workshop on HIV/AIDS Education, sponsored
by the UCSF Center on Deafness in SF. It was great! If you want more
information about HIV/AIDS in the deaf community, I suggest you get in
touch with Dan Langholz, COD director. What a resource!
From: Drion (a hearing-signer)
Date: Mon, 1 Apr 1996 08:40:11
Searching info on HIV/AIDS in the Deaf community
I am searching information on HIV/AIDS in the Deaf community. Who could send me articles on this subject or give me address of WEB site where I could find informations on this. Email.
From: Dragonsani Renteria (Deaf)
Date: Sun, 8 Apr 1996
Re: Searching info on HIV/AIDS in the Deaf community
We've currently got a Deaf HIV/AIDS web site under construction. It will include a list of published articles and research papers (and possibly the articles, papers themselves), a list of names of Deaf people we've lost as well as prevention info and other resources. The site should be available within the next couple of months.
Those of you who have written (or are in the process of writing) research papers related to the Deaf Community and HIV/AIDS, please consider sharing your work with the Community by publishing it in this new web site.
From: TLMJMF (Deaf)
Date: Wed, 17 Apr 1996 21:23:47
AIDS in the Deaf Community
I have been doing a research and am still doing one called AIDS in the Deaf Community in Maine Are there Misconceptions? I cannot wait till the new site is avialable. I have not seen many articles since feb of 1995. Hope to be involed I have also done a research called Surving partners of people with AIDS as my partner died of AIDS in 93. I am deaf and he was hearing.
From: Anonymous (CODA)
Date: Thu, 18 Apr 1996 23:22:14
Obituaries??
Would it be alright to post obs on this page or somewhere else in the forum?
From: Dragonsani Renteria (Deaf)
Date: Fri, 19 Apr 1996
Re: Obituaries??
Yes, please feel free to post obituaries, memorial announcements, or anything else related to HIV/AIDS here.
From: Linda Potkovic (hearing)
Date: Sun, 5 May 1996 11:12:21
Definitely Well-Needed
I am not deaf. I am surfing and found your site. I have been facilitating AIDS support groups now for approx. seven years. Two of my group members are deaf. One is beginning his own group and although he has an e-mail address, he has not accessed the web yet. I am getting him information that will help me. I am printing some of your info and will give it to him. I think your site is great and definitely well-needed. Thanks.
From: Marylouise Lambert (a hearing-signer)
Date: Mon, 13 May 1996 20:14:18
deaf access HIV testing
I'm working on a project to improve access to testing in Alameda County, using SF's UCCD/ Deaf AIDS Project as a model. We're interested in getting feedback on the following from deaf folks, wherever you live.
Would you prefer HIV pre/post test counseling from:
a. a deaf counselor
b. a hearing counselor who is a "fluent" signer
c. a hearing counselor who can sign, with a qualified interpreter
d. a hearing counselor, with a qualified interpreter
e. a hearing counselor, no interpreter - lip read, write notes etc.
P.S. I just noticed "hearing signer - deaf in the family" is not an option. We're not CODAs but there are a lot of us out here who do have deaf siblings, cousins, grandparents, kids, etc.
Any thoughts on that one, smile. (Probably obvious, but I am new on the net, too.) Email.
From: Anonymous (Deaf)
Date: Wed, 15 May 1996 13:26:34
Finally completed my research but
I finally completed my research but wonder when the Deaf HIV/AIDS site will finally
be ready for us to use. I am really looking forward to it. I did
research on AIDS in Maine in the Deaf Community. CTN is the only
magazine where I could find updated info for the year 1996. Frank
Lester's article is great and worth reading. Wish there could be more
people like Frank to help us to help each other. Thanks Frank for a great article.
From: N. Sunny Wolf (a hearing-signer)
Date: Sat, 1 Jun 1996 08:38:02
Deaf AIDS Support
I am currently starting AIDS/HIV Education program in Fresno,California through Valley Advocacy and Communication Center for the Deaf (VACC).Looking for all the support we can get from the Deaf comunity. Hard place to be Queer and Deaf, but I hope this program will help. Welcome suggestions, comments and votes of support. Looking to network with others doing the same work. I am Queer Hearing Signer since I was 11 year old. Email.
From: Rodolfo Celis (a hearing-signer)
Date: Tue, 4 Jun 1996 16:59:03
AIDS educational material for Deaf
Hello,
I'm a hearing signing person who will be doing linguistic fieldwork in
the Mosquito Coast of Nicaragua in July-September. Also, I will be
working at a school for the Deaf there in the coastal town of
Bluefields, where I will be learning Nicaraguan Sign Language, which
is quite distinct from American Sign Language and other varieties of
sign language used in the Americas. This is a fairly new language
which has only been documented recently, mainly by linguists out of
Rutgers University such as Dr. Judy Kegl. I will be joinng this team.
ANYWAY, here's my question: I have been asked to set up an HIV/AIDS
educational seminar down there for the Deaf community, mainly on the
issue of sexual behaviors and HIV transmission. I have some
experience in this area, having worked for the Chicago Recovery All-
iance, a Chicago harm reduction outfit, and hosted a tv show called
AIDS Call-In Live for the last two years. However, the Nicaragua
situation poses a unique challenge, in that this is a language which
no materials are published in, so ASL materials aren't going to be
that useful. SO - does anyone know where I can get any purely visual
materials related to sexual behaviors (please, no jokes about porno
mags!) that might help me lead a seminar on HIV prevention (I will be
working through a native signer of Nicaraguan Sign Language). For now,
the more visual and less linguistic the better, since my interpreter
will be transcibing what I say into the local sign language.
If anyone has any ideas about this, I'd really appreciate feedback.
My email address is crcelis@midway.uchicago.edu
Thanks and peace, Rodolfo Celis.
From: Anonymous (Deaf)
Date: Fri, 14 Jun 1996 21:06:49
D.E.A.F.,Inc. AIDS Project - Boston
If you want more research or information on HIV/AIDS... check out Boston's D.E.A.F., Inc. AIDS Project which has couple of good Deaf staff who are knowledgable about HIV/AIDS issues and are sensitive. Give them a call at 617-254-4041 TTY between 9 am to 5pm weekdays. Just ask for the AIDS Project staff.
From: Anonymous (an interpreter)
Date: Fri, 14 Jun 1996 21:45:02
Good Bye Jay
Jay D. Wilson
Dec. 3, 1950 - May 26, 1996
"The deaf community has lost its sign language interpreter, Jay Wilson, to AIDS complications. Born in Akron, Ohio, to deaf parents, Jay had been very active in this community, as well as a member of the Rainbow Society for the Deaf. He moved to San Francisco in 1978.
Jay was a founding member and on the board of the Deaf Community AIDS Project (DCAP). At every major event like Gay and Lesbian Freedom Day Parade or the annual AIDS Candlelight March, Jay stood onstage and signed to the deaf.
A funeral Mass was held at Mission Dolores Basilica, and he was buried in the Colma Cemetary. Surviving are his parents, Clyde and Nelliw Wilson; sisters Priscilla Metzler and Gloria Roberts; brothers, Jerry and Windsor Wilson; nephews, Travis, Derrick and Jeremy; nices, Nicole and Jacqueline; three dearest friends, Gayle, John and Helen; and the others Jay shared his friendship with.
The memorial service will be at San Francisco Club, 530 Valencia St., in San Francisco on Saturday, June 22, from 1-5 PM. For information about the memorial service, please call James at 510-261-9876 TTY or John at 415-323-0402 TTY." --Bay Area Reporter
From: Dragonsani Renteria (Deaf)
Date: July 5, 1996
Deaf HIV/AIDS Resources Update
From DQRC's "What's New" Page:
The response to our upcoming Deaf HIV/AIDS Resources web site has been tremendous! We've recieved obituaries and pix from around the country! We need help completing this site. If anyone would like to volunteer, contact us at dqrc@hooked.net. HTML knowledge helpful, but not required.
Since it may be some time before we have the Deaf HIV/AIDS Resources web site up, we wanted to let you know about some Deaf AIDS organizations currently on the web. Check out: the Arizona AIDS Services for the Deaf (the first Deaf AIDS service organization to have their own web page, they just updated the page again a few months ago), the Deaf AIDS Center of San Francisco, CA and the Deaf AIDS Project of Michigan. DQRC is currently working on web pages for several other organizations. A complete listing of Deaf AIDS organizations will be available on the Deaf HIV/AIDS Resources web site. Watch for it!
From: Sarah Pack (Deaf)
Date: Tue, 27 Aug 1996 15:15:11
BOSTON TO NYC AIDSRIDE 2
I'm one of the 4000 riders who will ride 300 miles from Boston to NYC
in four days on September 5-8,1996. Each rider has raised at least $1500
before the Ride. All the money raised will go directly to three community
centers which provide AIDS services. I still have $1000 more to raise. Will you
sponsor me? Details are available - email me to let me know about your
interest.
If anyone wants to join the ride, volunteer as a crew, volunteer their
support or medical services, or anything else, please contact me. I
will be more than glad to help you sign up for the Boston to NYC
AIDSRide 2.
Also, if anyone in the New England and Atlantic area would like to
cheer the riders while they ride through towns, I'll be glad to give
you the town names and routes. We need your support.
I'm the only Deaf rider (that I know of) in this big Ride, and I am
riding for the Deaf community. This is my way of helping spread the
word about AIDS (education) and letting Deaf people with AIDS in the
area know that there are free services and support available out
there.
I can be contacted at FPACK67267 at AOL. Again, thanks for your
support.
From: Mr. Chad Andrew Ludwig (originally Miller) (Deaf)
Date: Sun, 1 Sep 1996 21:13:41
I may will need some of your help in near future
Hiya,
I am going to begin my very 1st day of internship in social work at
AIDS Rochester, Inc. (ARI) on this coming September 5th. I am looking
forward to it a lot. I am not too sure on what to expect to happen
at ARI since my supervisor had my schedule all set. What I am trying
to point is that I may will need some of your assistance in my
progression during my internship.
Thought I would say something here, smile.
-Chad A. Ludwig (originally Miller)
From: Dragonsani Renteria (Deaf)
Date: Thurs, 19 Sep 1996
Send Obituaries to CTN Magazine
Howdy folks! Please send obituaries of those special Deaf Queers we've lost to AIDS or breast cancer to CTN Magazine (ctnmag@aol.com). We'll help get the word out!
From: Vicki Liggera (Deaf)
Date: Mon, 30 Sep 1996 14:30:08
Paper re: Deaf & HIV/AIDS
Hiya everyone! Wow, I was just surfing through my net in desperate for some resources that I could find about Deaf and HIV/AIDS. I'm very pleased and amazed to say that there's quite a lot of resources where I could get information, but I haven't been able to find out anything of such solid sources. Does anyone know of any books or articles where I could find out more information on this issue? I'm doing a big research paper on this issue and explain why this is a big issue on our community over the United States. I will be gladly to give out my paper once completed but I am hoping that whoever reads this will be able to fill me in and help me out.
I would also like to mention a big congrats to those who completed the AIDS ride from Boston to NY. I happened to be supporting two of my hearing friends at the closing ceremonies in NYC and it was a truly wonderful experience and I would again congrats to those Deaf riders that my hearing friends had the opportunity to meet! Thanks for your courageous support!!
From: Randy M. (HH)
Date: Thu, 3 Oct 1996 19:58:38
Seeking information
Am HOH interpreter training at the local community in my city. Am interested in learning TTY numbers for Deaf people living with AIDS - preferably 800 numbers - but any information where more information can be obtained re: AIDS, the new medications, new testing methods (i.e. viral load testing, etc.) would be appreciated. Am assisting a friend with AIDS negotiate the services in our area but have found no information of the nature I noted that is not too technical and medical to understand. Thanks for your help. Peace.
From: Trevor Storrs (a hearing-signer)
Date: Tue, 8 Oct 1996 13:11:34
HIV/Aids and the Need for Work Accommodations
I have no thoughts on this specific topic. I am currently a Graduate student in the Rehabilitation Counseling Department at Gallaudet University. For a class project, I have selected to do a presentation on HIV/AIDS. The focus of the presentation will consist of the following:
1) HIV/AIDS biology
2) How it can be transmitted
3) Ways to protect oneself
*** Main Focus ***
4) As a rehab. counselor, what types of accommodations will have to be made for an individual on a work site and possible in their personal setting as well. Will the individuals be able to work and if so, in what compacity. I would like some ideas and if possible some personal
experiences as well. Any help would be greatly appreciated. Thanks everyone.
Trevor
From: Luci Davis (HH)
Date: Tue, 15 Oct 1996 18:08:26
HIV Counseling and Testing / AIDS Education
I am a hard of hearing person and I sign. I am in Oklahoma and we are developing an AIDS prevention brochure that has ASL syntax sentence structure and ASL signs. It should be printed before January. I am also doing counseling and testing for HIV in the Deaf community. Since I can sign, some Deaf signers come and do not request an interpreter. We do always offer an interpreter if the Deaf individual prefers an interpreter. What I do is difficult to explain like this but I would be happy to talk with anyone email or otherwise. We have put together alot of materials and work very cooperatively with agancies here in Oklahoma.
From: Jane E. Lessard (Deaf)
Date: Tue, 22 Oct 1996 06:15:06
Research on HIV/AIDS & DEAF
Hello All
I am so glad this page developed because i need some resources for my paper i find this page helpful.. very informative..
if u want my work published in ur magazine be happy to submit my research on Prevention and Education HIV/AIDS to the deaf population.. Im now a senior majoring in Health Sciences with option Community Health/Educator..I would like to be part of this phenomenona of research and collecting data on deaf with and without this disease.
From: Charlene Ward (a hearing-signer)
Date: Mon, 11 Nov 1996 10:37:53
aids/hiv education
I am also a Graduate Student at Galluadet, and I am searching for information from anyone on educational programs and services available to the deaf or hard of hearing. If you can be of any assistance, it would be greatly appreciated! I am looking for articles, journals, books, brochures, pamphlets, etc... Thanks a million for your help!
From: Dragonsani Renteria (Deaf)
Date: Wed, 04 Dec 1996
Obituary: Micheal P. Felts
It is with great sadness that I announce the passing of Deaf AIDS activist Mike Felts. His obituary can be found in the announcements section.
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